| All Attendees |
Track 1 Hemophilia
with Inhibitors 101
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Track 2 Hemophilia with
Inhibitors 201
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Track 3 Young Men
Hemophilia with Inhibitors
(13-19)
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Track 4 Men with Hemophilia with
Inhibitors (18 and beyond)
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7:30AM-8:30AM Breakfast 9:00AM-10:00AM Plenary Session 3:15PM-3:30PM Break 5:30PM-7:15PM Dinner
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10:45AM-11:30AM Early Treatment of Bleeding and Prevention of Joint Disease for Children
Carriers
Gizmos and Gadgets
12:00PM-12:45PM Lunch 1:00PM-1:45PM Immune Tolerance Therapy
Infusion Tips and Tricks
Gizmos and Gadgets 2:15PM-3:00PM Immune Tolerance Therapy
Single Parenthood
Advocacy 3:45PM-5:00PM Mom to Mom: A Conversation Between Moms for Moms
Dad to Dad: A Conversation Between Dads for Dads
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10:45AM-11:30AMLaboratory TestingAll About ElbowsProphylaxis with Bypassing
Agents 12:00PM-12:45PM Lunch 1:00PM-1:45PM All About Knees
Prophylaxis with Bypassing
Agents
Muscle Bleeds 2:15PM-3:00PM All About Ankles
Muscle Bleeds
Point/Counterpoint—Medical Grab Bag 3:45PM-5:00PM Mom to Mom: A Conversation
Between Moms for Moms
Dad to Dad: A Conversation
Between Dads for Dads
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10:45AM-11:30AM Jeopardy Game—Treatment Issues 12:00PM-12:45PM Lunch 1:00PM-1:45PM Teen Transition with HTCs 2:15PM-3:00PM Gadgets and Gizmos 3:45PM-5:00PM Preparing for the Future
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10:45AM-11:30AM Advances in Treatment of Hepatitis C 12:00PM-12:45PM Lunch 1:00PM-1:45PM Addiction 2:15PM-3:00PM Financial Ramifications
of Living with Hemophilia 3:45PM-5:00PM Preparing for the Future
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7:30AM-8:45AM Breakfast 12:30PM-1:45PM Lunch 3:00PM-3:15PM Break 6:00 PM-8:45 PM Dinner and Family Activity Off-site
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9:00AM-9:45AM Family Dynamics of Inhibitors
In breakout groups: parents, grandparents, spouse, patient, sibling, etc. 10:15AM-11:00AM Planning for Surgery
Spirituality
Sibling Issues
11:30AM-12:15PM Planning for Surgery
Spirituality
Sibling Issues 2:30PM-2:45PM Stress Management--Depression, Anxiety, Anger 3:30PM-4:15PM Ask the Experts Rap Sessions (Optional-All Speakers Still On-site)
Group Exercise Session (Optional)
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9:00 AM-9:45 AM Family Dynamics of Inhibitors
(In breakout groups: parents, grandparents, spouse, patient, sibling, etc.) 10:15AM-11:00AM Ask the Expert—
Orthopedic Surgery
Future Therapies
Understanding ACA and Exchanges 11:30AM-12:15PM Ask the Expert—
Orthopedic Surgery
Future Therapies
Understanding ACA and Exchanges 2:30PM-2:15PM Safety Issues
Fostering Independence 3:30PM-4:15PM Ask the Experts Rap Sessions (Optional-All Speakers Still On-site)
Group Exercise Session (Optional)
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9:00AM-9:45AM Family Dynamics of Inhibitors
(In breakout groups: parents, grandparents, spouse, patient, sibling, etc.) 10:15AM-11:00AM Sex, Tattoos and Piercings 11:30AM-12:15PM Point/Counterpoint—
Medical Grab Bag for Teens 2:00PM-3:15PM Disclosure 3:30PM-4:15PM Ask the Experts Rap Sessions (Optional-All Speakers Still On-site)
Group Exercise Session (Optional)
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9:00AM-9:45AM Family Dynamics of Inhibitors
(In breakout groups: parents, grandparents, spouse, patient, sibling, etc.) 10:15AM-11:00AM Muscle Bleeds 11:30AM-12:15PM Behind the Bedroom Door 2:30PM-3:15PM Ask the Expert —
Orthopedic Surgery 3:30PM-4:15PM Ask the Experts Rap Sessions (Optional-All Speakers Still On-site)
Group Exercise Session (Optional)
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